Reflective Piece on a Carer’s Involvement and Contribution to PalliatHeartSynthesis: Palliative Care in Heart Failure Project
Why I think this project is important, and why I as a carer, wanted to be involved My father had Chronic Heart Failure (CHF) and died in June 2022 after many years of poorly controlled symptoms. When he died, we, as a family, wanted to be involved in palliative care in some way to make […]
Reflective Piece on Patient’s Involvement and Contribution to PalliatHeartSynthesis: Palliative Care in Heart Failure Project
Why it was important to me as a patient to be involved in this project “Yes, I had experienced serious illness with dilated cardiomyopathy. At one stage I was given only weeks to live by the cardiac consultant unless I received a heart transplant. Fortunately, I was lucky. “I also cared for my father who […]
Hear from the Experts: The Perspective of a Leading Expert in Heart Failure and Palliative Care
Yvonne Millerick is a Heart Failure Palliative Care Nurse Consultant Senior Lecturer employed by Glasgow Caledonian University with a clinical secondment to Glasgow Royal Infirmary. Yvonne is regarded as a leading expert in heart failure and palliative care and firmly believes that the clinical academic role is crucial for maintaining her professional credibility. In this […]
Some Thoughts on Terminology – a Patient’s View
(For NIHR Palliative Care Project – Queens University Belfast) This special issue paper was written by Mr John Burden, our PPI Partner, following discussions on potential barriers to integration of palliative care in heart failure management during our last Stakeholder meeting in March 2022. These discussions sparked John’s interest in trying to understand connotations around […]
Hear from the experts: the perspective of a clinician-researcher in heart failure
Professor Joseph G. Rogers is the President and Chief Executive Officer for the Texas Heart Institute, Houston, USA and a member of our stakeholder group. He is an internationally recognized and widely published thought leader in heart failure, heart transplantation, and mechanically assisted circulation. We asked Professor Rogers to share his perspective on conducting research […]
Hear from the experts: people with lived experience.
We are very privileged to have people with lived experience expertise on our research team to ensure our research focuses on what matters to patients and their families. Here, our three patient and public involvement (PPI) representatives share their perspectives on why they think integrating palliative care and heart failure is such an important research […]